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Gifts : Mothers Reflect on How Children with Down Syndrome Enrich Their Lives

The Gifts Outreach program provides complimentary copies of Gifts to organizations which serve parents facing a new diagnosis of Down syndrome for their child, either prenatally or postnatally. We believe that the stories in the book provide a vital companionship and support for such parents.

2008 National Parenting Publications Awards (NAPPA): Gold Award

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Showing posts with label world down syndrome day. Show all posts
Showing posts with label world down syndrome day. Show all posts

Sunday, March 21, 2010

Happy World Down syndrome Day!

Happy World Down syndrome Day
March 21st is World Down Syndrome Day (WDSD). The date was chosen to signify the uniqueness of Down syndrome in the triplication (trisomy) of the 21st chromosome and is used synonymously with Down syndrome. Commemoration of World Down Syndrome Day started on 21 March 2006, it has "grown" manifold globally. The annual observance of WDSD aims to promote awareness and understanding of Down syndrome and related issues : and to mobilise support and recognition of the dignity, rights and well being of persons with Down syndrome.

Below is a montage Rebecca created for this special day. Enjoy!

Saturday, March 21, 2009

Happy World Down syndrome Day!




World Down Syndrome Day 2009 is celebrated on 21st March. The date was chosen to signify the relevance of Trisomy 21. (3/21).

On March 21st, 2009, World Down Syndrome Day will also mark the 50th anniversary of the publication of Professor Jerome Lejeune's discovery of the extra copy of chromosome 21 which causes Down Syndrome.

Now known as trisomy-21 because of the third copy of the 21st chromosome, Down Syndrome was first described by the English doctor, John Langdon Down, in 1866 but until Professor Lejeune's publication in 1959, the ultimate cause of Down Syndrome was unknown.

Professor Lejeune and Dr Langdon Down are regarded as the preeminent contributors to our present understanding of Down Syndrome, not only because of their research into Down Syndrome, but also because each of them contributed much of their own time and money to advocating on behalf of persons with Down Syndrome and their families.

Down Syndrome organisations around the world this year will pay tribute to the pioneering work of Professor Lejeune and celebrate the tremendous advances in the care and social welfare of people with Down Syndrome over the past fifty years.

"Professor Lejeune provided inspiration to parents and professionals who met him, and drew strength and hope from his optimism and his simple and profound dedication to humanity. The Lejeune Institute inParis continues to sponsor research in this area” said Mrs. Penny Robertson, President of Down Syndrome International. “But while there is much to be proud of in western countries in the services provided for people and families with Down syndrome, there is still an enormous amount of work to be done in many countries".

So celebrate with us today, and learn more about Down syndrome, click here.

Wednesday, March 12, 2008

World Down Syndrome Day and Kelly's Upside Down Ball



On March 21st, World Down Syndrome day, Robbin will be donating her hair to Locks of Love in honor of her daughter Kelly at Kelly's Upside Down Ball. But you can help decide, does she give it all and leave BALD or does she get to keep a little on top? Yes, it's up to you to vote! Does she shave it or save it?

It's $1 per vote and all the money goes to Kelly's Upside Down Ball to help the families of individuals who have a dual diagnoses of Down syndrome and cancer in Indiana.

Wanna vote? Go to HERE
Where it says donation purpose scroll to "in Honor Of" then type in save it or shave it for who and KUSDB for the event. At the ball we'll announce which side wins and if Shave It wins, Robbin will shaved it off right there!

Help grow this fund by sending this blog link to all your friends and family. It's only a dollar for a great cause! Her goal is to raise at least $1000.00 but she could do so much more with your help- she has grown her hair since the last Ball a year ago. We always tell kids with leukemia that it's no big deal to lose your hair, it grows right back. Well she is out to prove it! So let's have some fun, help a good cause and cut for a cause!

To learn more about Kelly's Upside Down ball Click Here.



**** NOTE: There were technical difficulties with the donation site but I have been told hey have been fixed**********