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Gifts : Mothers Reflect on How Children with Down Syndrome Enrich Their Lives

The Gifts Outreach program provides complimentary copies of Gifts to organizations which serve parents facing a new diagnosis of Down syndrome for their child, either prenatally or postnatally. We believe that the stories in the book provide a vital companionship and support for such parents.

2008 National Parenting Publications Awards (NAPPA): Gold Award

2008 Mom's Choice Awards: Silver Recipient, Special & Exceptional Needs

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Tuesday, May 27, 2008

Michael Treinen loses his leukemia battle

You may remember me blogging here about Michael Treinen, a 19 year old from our town of Noblesville battling leukemia, specifically AML. His story hit home as so many of our kids with Tri21 battle leukemia, yet having that extra chromosome is actually a benefit in the battle against cancer. Pretty cool in a cancer/extra-chromosome kinda way.

The other issue is that Michael's insurance was tapped at the 1 Million dollar mark. Many of our kids with tri21 have health issues that tap their funds early too which is so, so unfortunate. I so hope the communities in which children with Down sydrome need financial assistance would rally to their help, like Noblesville did for Michael.....

But Michael lost his battle before he could qualify for the stem cell transplant, as his remission didn't last. The story is here.

Our thoughts and prayers go out to the Treinen family, and I hope the money goes to good use to battle leukemia for all populations.

2 comments:

Tara Marie said...

I'm so sorry to hear this news....so very sad.

My heart goes out to his family and friends.

AZ Chapmen said...

I love the pic of the boys I am sorry about Mike My heart gose out to the Treinens